Today has been a GOOD DAY! Dani has felt pretty well, ate about half a bowl of cream of wheat, drank a swallow or two or cranberry juice, and ate half a banana in the morning part of the day. There's only one problem. Apparently everything tastes like DIRT! Yep, you heard me. DIRT! Oh, well, we are hearing now that the mucositis that we thought was gone, lingers on to cause these fun developments.
We walked 7 times today, and she rode the bike for a few minutes. She was determined not to sleep a lot so that hopefully she will sleep tonight, so she only took two short (30 minute) naps during the day to rest up from all that exercise. Later in the day she ate a few spoonfuls of chicken noodle dirt and worms, along with a saltine cracker that about sent her into upchucking. But she got some down and it stayed there.
It it now 10 p.m. and the time she has decided to go to bed. So here I sit, typing along as she settles in for the night. Hopefully it will be a peaceful one. Her numbers are wonderful, she is actually fully engrafted, not to say that lots of her blood numbers have a long way to go, but the new blood is taking hold and doing its job. In fact, part of the distress that she is feeling may just be GVHD. Probably there will tests tomorrow to determine that for sure. Today we are satisfied and on the road to recovery.
More later
Bye for now
MOM
What does GVHD mean?
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