So,
I've been home for a little over a month and I thought that things were
going relatively well. I haven't been feeling AS sick as I did in
Seattle. At least not everyday. There have been tough days, more than I
expected, but all in all things (I thought) were going just
dandylicious. I scheduled my return to work, even if it is just a couple
hours a day. I haven't been able to find a place to live in Boise as of
yet, but hey, I just haven't found the right place eh? That is what
happens when you have a big dog that needs a fenced yard. Makes things a
bit more difficult. Especially when you are on disability and a tight
budget. Anyhoooo, even though there have been some rough things and
tough days, I was thinking things were looking up. I had even scheduled
an appointment to audition for a musical. Well, yesterday, I had to make
a few different choices.
It's
been a few days that I have NOT been feeling well. I've been
ridiculously exhausted, to say the least a little grouchy, nauseated,
either starving or so sick of food I can't stand it. My mouth has been
sore and my tongue felt like someone has taken a cheese grater to it, my
back had a slight redness to it, but was itchy as all get out. To say
the least it was some sarcastic good times. :) So, even though I already
had an appointment scheduled with my Oncologist for today, I called
them on Tuesday to let them know all this fun that was happening and
they had me come in yesterday. Blood draw and then chat followed by a
great fun surprise. :)
Well,
the blood draw came back as expected. My liver is not cooperating
properly, my white blood cell count is falling and all in all things are
not looking as good as they did a month or so ago. So, with those
lovely results and the additional issues I was having, the doctor said
things weren't as wonderful as they had hoped. I mean, things are still
going well. My transplant is still good to go and that is all fine, just
the repercussions of it are starting to act up. :) So, a diagnosis of
mild Graft Versus Host disease in my mouth and on my back brought on a
new medication of the most FOUL tasting topical steroid mouthwash. I
mean, who REALLY thinks THAT is what cherries taste like. I mean really.
Four times a day of the nasty stuff. :) Then a diagnosis of dehydration
brought on an IV in my hand connected to a big bag o' hydration. :) I
can say that it was nice to just plug in to my audible book on my
kindle, take advantage of the wonderment of a heated blanket and just
lay back and get some saline put in my bloodstream. It's phenomenal the
difference a bag o' water can make in how a person feels. I have another
tentative appointment for more IV joy next week. :)
To
say the least, I did not expect to be here at this point. I have had to
have a reality check that I am weaker than I thought and that I really
DO have to take my time in recovering. To say the least, no auditioning
for musicals. :)
I
am feeling alright today, drinking more fluids than any normal person
should HAVE to, checking Craigslist every ten minutes to try to find a
house and trying to decide how to go forward with all my plans and
schemes without troubling my health. Anyway, that's the update for these
days. :) I'm really doing alright, but there just seems to be more
obstacles and hold ups than I expected. :) But it's all good. I know
that there's a specific plan for me and it's gonna be so awesome I won't
be able to handle it. :) Woot. I can't wait, but hey, I get to. :)
